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Curso de Atualização em Medicina Cardiovascular 2019
Reunião Anual Conjunta dos Grupos de Estudo de Cirurgia Cardíaca, Doenças Valvulares e Ecocardiografia da SPC
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0 Topics
A. Basics
B. Imaging
C. Arrhythmias and Device Therapy
D. Heart Failure
E. Coronary Artery Disease, Acute Coronary Syndromes, Acute Cardiac Care
F. Valvular, Myocardial, Pericardial, Pulmonary, Congenital Heart Disease
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01. History of Cardiology
02. Clinical Skills
03. Imaging
04. Arrhythmias, General
05. Atrial Fibrillation
06. Supraventricular Tachycardia (non-AF)
07. Syncope and Bradycardia
08. Ventricular Arrhythmias and Sudden Cardiac Death (SCD)
09. Device Therapy
10. Chronic Heart Failure
11. Acute Heart Failure
12. Coronary Artery Disease (Chronic)
13. Acute Coronary Syndromes
14. Acute Cardiac Care
15. Valvular Heart Disease
16. Infective Endocarditis
17. Myocardial Disease
18. Pericardial Disease
19. Tumors of the Heart
20. Congenital Heart Disease and Pediatric Cardiology
21. Pulmonary Circulation, Pulmonary Embolism, Right Heart Failure
22. Aortic Disease
23. Peripheral Vascular and Cerebrovascular Disease
24. Stroke
25. Interventional Cardiology
26. Cardiovascular Surgery
27. Hypertension
28. Risk Factors and Prevention
29. Rehabilitation and Sports Cardiology
30. Cardiovascular Disease in Special Populations
31. Pharmacology and Pharmacotherapy
32. Cardiovascular Nursing
33. e-Cardiology / Digital Health
34. Public Health and Health Economics
35. Research Methodology
36. Basic Science
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Perception of symptoms, concerns and global disease experience in patients with heart failure
Session:
Posters 2 - Écran 7 - Insuficiência Cardíaca
Speaker:
João Agostinho
Congress:
CPC 2019
Topic:
D. Heart Failure
Theme:
10. Chronic Heart Failure
Subtheme:
10.7 Chronic Heart Failure - Other
Session Type:
Posters
FP Number:
---
Authors:
João Pedro Ribeiro Agostinho; V. Diaz; B. Gonzalez; C. Rivas; P. Velayos; J. Lupon; M. De Antonio; P. Moliner; M. Domingo; A. Bayes-Genis
Abstract
<p>Background: Knowledge of subjective perception of symptoms, concerns and global insight of the disease by patients with heart failure (HF) is key for nurse assessment and management. Although not being widely used in this setting, patient-reported outcome measures like the Integrated Palliative Outcome Scale (IPOS) can help nurses to identify and manage the more troublesome symptoms and palliative concerns in HF patients.<br /> Purpose: To evaluate symptoms, concerns and disease perception in patients followed in a multidisciplinary HF Unit using a personal translated version of the IPOS.<br /> Methods: The IPOS is a widely used tool to measure palliative care needs of patients and their families, capturing their most important concerns in relation to symptoms, information needs, patients and family anxieties and overall feeling. We applied IPOS to a set of patients followed in a HF Unit, independently of age, etiology, NYHA functional class and left ventricular ejection fraction (LVEF).<br /> Results: The scale was applied to 595 patients (mean age: 69 ± 11.8 years; 72.1% men; median time from symptoms onset: 77.5months (IQR 22-112); mean LVEF: 44 ± 13.1%, NYHA class I: 9.2%, II: 79.3%, 3: 11.1% and IV: 0.3%). Two hundred and seventy three patients (45.9%) reported concerns 3 days prior to evaluation. The sources of concern most frequently reported were health status (18%), familiar problems (14%), pain (5.9%) and economic problems (5.2%). When perception of symptoms was assessed, weakness was the most frequently reported troublesome symptom (55.1%) being reported as overwhelming or severe in 9.4% of patients. It was followed by mouth dryness (46.2%), lack of mobility (44.5%), pain (43%) and dyspnoea (33.8%). The majority of patients reported depression or anxious (62% and 66.4%, respectively) and 88 patients (14.8%) highlight that rarely or never feel at peace. Most patients considered themselves as a source of anxiety to relatives/carers (85.7%), although generally recognize they share their feelings with family members (72.3%). Four hundred and ninety patients (82.4%) reported having received all the information they needed about their disease.<br /> Conclusions: Patients with HF frequently present concerns related to their disease and these are important sources of depression and anxiety. Importantly, disease related concerns may have a negative role in familiar dynamics, entailing an increased burden of anxiety for patients and family members. Weakness was the most frequently reported troublesome symptom.</p>
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